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Advocacy Groups: Enhancing Relationships and Patient Recruitment

  • July 2013
  • 54 pages
  • Industry Standard Research
Report ID: 2081987

Summary

Table of Contents

For the report, ISR interviewed senior decision-makers from ten prominent patient advocacy groups to provide never before seen qualitative insight into the current relationships advocacy groups have with the biopharmaceutical industry, as well as best practices for improving those relationships and activates related to clinical trial recruitment.

“Patient advocacy groups are spread across the spectrum regarding how involved they are with the development of new medicines. All respondents posit that clinical trials are the way to move forward, but for various reasons many have yet to delve into playing a role in the clinical trial process,” explained Kevin Olson, CEO of ISR. “ISR’s newest report explores these relationships, offering best practices and proven strategies to broaden partnerships, obtaining support, and where appropriate, recruit trial participants.”

ISR’s report offers “use-cases” and strategies for pharmaceutical and biotechnology organizations looking to broaden recruitment channels for difficult-to-recruit trials and/or optimize communications with advocacy groups.

What you’ll learn from ISR’s report:

• The type of relationships advocacy groups desire with industry, including: involvement in clinical trial design, collaboration on patient recruitment, and their role in connecting patients to industry
• Advocacy groups’ concerns with encouraging clinical trials, including: the need to remain neutral, patient education, and trial burden on patients
• Recommendations and best practices for delivering messages to patients and families about clinical trials

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